[ID: a series of tweets by #EndIntersexSurgery (@pidgejen)
Anyways, let’s
start with what I thought I once knew about myself. When I was 18, I
discovered I wasn’t like other girls. My medical records read
“male pseudo-hermaphrodite 46 XY” & other BS terminology that
pathologised my healthy/beautiful intersex body.
I discovered then
that I had been diagnosed with partial androgen insensitivity
syndrome (PAIS); my XY body couldn’t fully utilise androgens (like
T) and so I developed mostly like a typical female person externally.
For me, this meant
that I had a somewhat “ambiguous” looking body (aka a non-binary
body) and the doctors performed 3 unnecessary cosmetic surgeries to
make me look more like a “normal” girl:
gonadectomy
Clitorectomy
Vaginoplasty
Not to mention, they
lied to me about ALL OF THIS and then forced me to take Premarin (a
low dose of estrogen made from extracting the hormone from pregnant
mare’s urine)
Anyways, I got in
touch with a new endocrinologist recently thanks to my therapist at
@RushMedical who suggested I see him.
He did something no
other doctor has ever done. He asked me if he could see my medical
records, all of them, and then took time to read of them.
He even reached out
to other experts in his field when he was confused by something.
Wow. We love
humility in medicine.
Anyways, he ends up
suspecting something is up and that perhaps my PAIS diagnosis is
wrong.
He then orders me a
genetic test. Thanks to covid it took almost half a year to get the
results, but a month or so ago I got them back.
Turns out, I don’t
have PAIS, I actually have something known as NR-5A1. Now this is big
news mostly because 1. It supports my thesis that docs who deal with
intersex kids don’t know shit…
And 2. P/AIS
intersex folks are believed to not be able to utilise androgens and
so we’re often only given estrogen (never T), forcibly “feminised”
with fucked up “cosmetic” surgeries, and forcibly assigned
female.
Doing what they did
to me was fucked up enough, but now realising that they didn’t even
have the diagnosis right – and that I can
utilise androgens – is fucking infuriating beyond belief.
We
need to #EndIntersexSurgery y’all like yesterday.